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Sherry Nevius, single and 52, is looking for a mate with all the important adjectives — caring, sincere, intelligent, funny. Oh, and one more thing: disabled. Born with cerebral palsy , Ms. Nevius uses a wheelchair. She is independent and mobile, but would prefer to meet a man who could roll alongside her.How to manage lab tubes for blood draws in Hemodialysis. [Dialysis Training]
Wishing you the best! He took it totally in stride and his first reaction was to offer me a kidney, ha! He started doing his own research and even formed a team for our local PKD Walk. He was my ride and company when I had some cysts aspirated. Hi Meredith, Yay for amazing men! I am so happy to hear that you and your boyfriend are battling PKD as a team and that his first reaction was to offer you a kidney.
I wish the two of you all the best on your PKD journey. The news was devastating yet I knew I would need to be his rock.
You can not chose the life that is handed to you, all you can do is fight it with your every being. After years of hemodialysis, peritoneal home dialysis and then his life saving transplant the battle was not over. He went through rejection which caused some scarring on the new kidney but doctors were able to save it. A year later one of his PKD kidneys began to bleed and caused him severe pain. The decision was made to remove that kidney which weighed close to 20 lbs.
It has been 3 months since this surgery and so far…. Hi Deadra, Wow, both of you are such fighters. I admire your strength.
From a patient, thank you for being an amazing caregiver. It means the world to us fighting PKD. I am SO happy to hear that your husband is doing great!
I am surprised that there seems to not be one dating site for people with . in center dialysis patient, lonely, feeling as if life has passed me by. When you are on dialysis you are hooked up to a machine that cleans your blood (that's usually the kidneys' job). So there is little moving around for patients. I quickly learned how patient and accepting Noah is, as we have been Noah, who was lying in bed, and said, “Did you ever think you were dating a sick girl?.
I wish you two the best. Thank you for sharing your journey. This is hard but my husband has PKD out of 6 children 4 are gone. From side affects of PKD. Watching his siblings pass not being able to get the transplant in time.
I am Thankful for the doctor that kept my husband off of dialysis til he was able to get his transplant. Now our son has PKD. I knew all of this before I married him we have been married for 17 years he is 4 years strong with his new kidney.
I am Thankful for the love we have shared for those 17 years. I would have never known what love was if not for him. If something happens I will be able to say I know what love is.
Hi Donna, So beautifully said. I am very sorry to hear the devastating impact PKD has had on your family. I share those same sentiments and say that if I have a short life, I am happy to say that I know the true meaning of unconditional love. Not everyone is so fortunate to say that. Thank you for being a wonderful caregiver and walking this path with your husband. My husband has PKD and I remember him telling me on the way to a nice dinner when we had been dating for only a few months.
At first I panicked, but at that point, I knew this was my soul mate and that we could handle anything together. Wonderful to hear that your husband received a transplant and I hope that he is doing well. Thank you for sharing your story. Wishing you two all the best! You are such an inspiration to all who read your posts. Glad you found such a loving and caring guy. Before I got the news, my mother received a kidney transplant but sadly passed away months after the transplant.
That was 30 years ago and I know things have changed a lot. Long story, short version. Not a very understanding person as she was a nurse! Everyone in my family who had this disease all passed away at age So she wanted to start her life over without me.
That clearly shows that you deserve better. There are many people just as lucky as I am. I say this, because since volunteering with the PKD Foundation inI have met many families, husbands and wives, that battle this disease together. I sure hope you can find an understanding woman who will join your team.
Right now, my mom is the oldest person to live in my family with PKD and she is Everyone else passed away 53 and younger. I am so sorry to hear how PKD has affected your family. It is an ugly disease and that is why I share my story and do all I can to help the cause.
Thank you for your kind words. I wish you all the best!
dialysis - Free Dating, Singles and Personals. Users Interested In dialysis. Online Dating. every superwoman needs a Superman. goose creek South Carolina. Relationships, Dating and Transplant Pregnant on dialysis WOW I guess me and my honey have no room to I like be on this dating site. Sex and intimacy factors affecting those with chronic kidney disease and on dialysis. Resource Center · Recipes · Patient Travel Services Information Request · Sign up for Ongoing Basically, you need to avoid putting direct pressure on a fistula or graft. Make a regular date with your partner to be intimate in some way.
We had many years of happy memories, almost 15 years of her being a transplant patient. I hope your health is well. Your stories are an inspiration. PKD and PLD are difficult and it takes special people to be tough and kind and help us walk through the health issues. Hooray for you wonderful loved ones in our lives!
Everyday is a blessing. By the Grace of God I pulled through. Good to know there are people out there who understand!! Hi Sherri, I am sorry to hear all that you have battled, but it is obvious that you are a warrior with immense strength. I trust that you will find the strength to share your story again. I hope you will find someone to support you and join your team in fighting PKD. Hi Ellen, Thank you so much! Our disease sure is difficult and I am very grateful for all of the wonderful loved ones that support us.
I share your same sentiments. Each new day is a gift. Thank you for sharing your positivity. My girlfriend told me about her PKD after a few dates. Then, I told her I have diabetes. Her reaction was the same as mine.
From my viewpoint, it is good for the person with PKD to let their partner know maybe not as soon and direct as Valen did with Noah. For those of you that had a person leave after learning about your PKD, I have to say you deserve better anyway!
Hi Andreas, I am so happy to hear that you and your girlfriend have found each other. You both have a deep understanding for battling a health issue and will be great support to one another.
Thank you for sharing your positivity in regards to those that have had a person leave them after learning they have PKD. I appreciate you sharing your story and your optimistic spirit. I wish you and your girlfriend the best of health! Hi Tina, Thank you very much. Feel free to send me more information about this to pkdwillnotbeatme yahoo. I totally agree with all the previous posts, your weekly blogs are wonderful…. For that you need to be thanked greatly and know just what an amazing PKD warrior and advocate you are.
Hi Jan, Thank you very much for this heartfelt comment full of support and love. Your friendship means the world to me!
Dialysis Singles is the first service of its kind to offer people on dialysis the opportunity to This is a totally free service made available to dialysis patients only. Sherry Nevius uses an online dating site specifically for those with disabilities Several dating Web sites for singles with health problems have. (See "Patient education: Dialysis or kidney transplantation — which is right for me ? . and the patient does not have a functioning AV fistula or graft. . and other health professionals up-to-date on the latest medical findings.
I told my boyfriend before we even started dating. I wanted be honest from the beginning. He knows I hurt most days and wishes he could do something to change that.
Dating sites for dialysis patients
But I am still a little nervous as it is a new only 6 months! Hi Danielle, I commend you on being so honest. You deserve to be with a man who loves and supports you through the good days and the bad days.
I wish you the best as you continue forward with this relationship. Be true to yourself and know that you deserve the best! Were you in a crisis Shen you received your transplant? Your doctor will take good care of you. Medicare helps financially for transplant and 3 years of meds if you do dialysis. Probably diff now. Your social worker will have all current info.
Best of luck. It will all work out. He has been with me through malignant melanoma at 21, multiple ER trips for asthma, life-changing sripluitons to accommodate my multiple chemical sensitivity, one harrowing pregnancy and one uneventful one that gave us two wonderful kids, and now PKD. He was honest and told me that sometimes it just gets to be a bit too much to bear and he had pictured things differently.
Many people don't know what kidney disease and dialysis entail. Change can be scary, so be patient with your partner as he or she processes what this.
He was honest and told me that he knows how difficult it must be for me and he feels badly for me, but that he needed me to understand how it affects him, too, and that he is only human. I understand.
I love that he was honest with me. I love that he is scared, like I am. I love that he is angry and discouraged like I am. I love that he will give me the kidney I might one day need so that we can grow old together — either as husband and wife or as best friends for life.
Dear iMom, I love that you shared your journey with all of us. Such a heartfelt story of what our lives are like and the emotions that PKD patients and our partners have. I am grateful that the two of you have stuck together and are enduring the good and bad days as husband and wife and best friends. So happy you have each other. It takes physical and mental strength to live with PKD and medical issues, you obviously have both. Take care! I was very ill and was on dialysis for about 8 months until I received a transplant.
I hope that you are able to see your nephrologist soon, as they will know what the best route is for when you should get a transplant or begin dialysis.
Relationships, Dating and Transplant - Kidney Transplant
Think about how you view yourself and remember to lead with your best characteristics. Do you see yourself as independent? Skip to main content. In many situations, talking about a health or personal issue can feel challenging or cause anxiety.
Many people have a part of their life they are nervous to talk about when dating, whether it is a chronic disease or a life circumstance, such as being divorced, having children from another relationship or even a recent break-up. Get to know the person and tell them when the time feels right.
They may have some misconceptions that might cause fear. Allow them to ask you questions and make it an open door discussion. Change can be scary, so be patient with your partner as he or she processes what this diagnosis means for him or her, for you individually, and for you as a couple. Be honest about your feelings and encourage your significant other to share theirs. Often we try to protect those we love and care about from difficult feelings; however this can leave you feeling isolated.
Sexual problems can happen to anyone, whether or not they have kidney failure.